Publication: Assessing informal caregiver burden as well as knowledge on positioning and feeding of stroke patients in Hospital USM
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Date
2022
Authors
Rahim, Al Mizan B Mustapa Ab
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Abstract
Background: Stroke contributes to high morbidity and mortality in both developed and developing countries. In a developing country like Malaysia, most stroke patients are taken care of by informal or family caregivers. Most of them did not receive adequate preparation and training. Hence may lead to an increase in caregiver burden. To date, there is a lack of information to correlate caregiving knowledge with the caregiver burden of stroke patients. This study examines the relationship between caregiver burden, caregiving knowledge, and demographic data of the informal caregiver of stroke patient in Hospital USM. Method: This cross-sectional study involves informal caregivers attending Rehabilitation Unit in Hospital USM. Caregiving knowledge and caregiver burden were measured using previously translated and validated CKQ-My (on positioning and feeding) and Zarit Burden Interview. Socio-demographic data of patients and caregivers also were sampled and analysed. Descriptive and multivariate statistics were used for data analysis. Result: Total of 76 participants were analysed, 87.8% of them had poor knowledge in positioning of stroke patient. Otherwise, all 46 participant whose been assessed for feeding knowledge showed to had good knowledge (mean score 15.59± 2.29). About half of informal caregiver experience burden (47.88%) in taking care of stroke patient and majority of them categorized in mild to moderate (42.1 %). Multiple logistic regression demonstrated that caregivers who taking care of stroke patient with MRS 4-5 has 4.9 higher odd compared to stroke patient with MRS 1-3 to experience caregiver burden (Adjusted OR= 4.9 ; 95% CI: 1.5 - 15.96; P=0.032). For non-primary caregiver has 94% lower odd to get burden compared to primary caregiver (Adjusted OR = 0.06 ; 95% CI: 0.02- 0.247 ; P= < 0.001). Conclusion: Informal caregivers of stroke patients at Hospital USM had poor knowledge on positioning, but good knowledge in feeding. Besides, they also experienced mild to moderate burden. Only Modified Rankin Scale (MRS) of stroke patient and type of caregiver (primary vs. non-primary) was found to be associated with the caregivers’ burden
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Keywords
positioning , caregiver burden