Children with transfusion dependent thalassaemia : the study of psychological distress and coping strategies among caretakers
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Date
2016
Authors
Ghani, Mohd. Sufian Ardi Abd.
Journal Title
Journal ISSN
Volume Title
Publisher
Pusat Pengajian Sains Perubatan, Universiti Sains Malaysia
Abstract
Introduction: Hemoglobin E beta thalassaemia is prevalent in Malaysia. Knowing
thalassaemia is a chronic disease it is a lifelong burdens not only to the patient but also to the
parent and other caretakers. Psychological distress is manifested in multiple ways and at different
level of severity. Therefore coping strategies are developed in order to reduce the stress hence
ascertain a high quality of life.
Objectives: The aim of this study were to determine the mean psychological distress
level and brief COPE of caretakers, to compare mean psychological distress level with brief
COPE and income status and to identify the associated factors for psychological distress and
brief COPE respectively.
Methodology: DASS 21 and brief COPE questionnaires.
3.54). Stress mean score was (4.25, SD 3.26). The highest mean score for brief COPE was
religion (7.00, IQR 2.00). Depressive caretakers had significant score for substance use (4.50,
IQR 3.00). Meanwhile anxious caretakers had significant score for denial (5.50, IQR 3.00),
substance use (4.00, IQR 4.00) and behavior disengagement (4.00, IQR 3.00). There was no
significant difference between psychological distress and income status. Age, gender, education,
working and income status were identified to have association with brief COPE.
Conclusion: Majority of caretakers had utilized religion coping, meanwhile substance
use, denial and behavioral disengagement were utilized by depressive and anxious caretakers.
Scoring for DASS 21 showed no significant different between two groups of income. Brief
COPE was associated with age, gender, education, working and income status.
Description
Keywords
Thalassemia