A Pilot Study On Pedsql ™ Modul Impak Keluarga Among Caregivers Of Children With Transfusion Dependant Thalassaemia In Hospital USM, Malaysia.

dc.contributor.author	Othman Tan, Suria Emilia Suhana
dc.date.accessioned	2017-11-21T06:39:38Z
dc.date.available	2017-11-21T06:39:38Z
dc.date.issued	2013
dc.description.abstract	Background: Thalassaemia is one of the commonest genetic blood disorders in the world. It is characterized by inadequate globin chain synthesis, leading to ineffective erythropoiesis, severe anaemia and chronic disease in children and adults. A child with thalassaemia requires lifelong regular blood transfusion in order to prolong survival and reduce extramedullary haematopoiesis. As any other chronic illness, thalassaemia does not only affect patient as an individual; it also involves variety of emotional and psychological burden to the parents and family as a whole. Unfortunately, there are very few studies done worldwide to assess parental heelth related quality of life (HRQOL) in transfusion dependant thalassaemia which is the reason why this study is important. Objectives: To study the parental health related quality of life and family functioning among children with transfusion dependant thalassaemia in Hospital Universiti Sains Malaysia and its associated factors.	en_US
dc.identifier.uri	http://hdl.handle.net/123456789/5285
dc.language.iso	en_US	en_US
dc.publisher	Pusat Pengajian Sains Perubatan Universiti Sains Malaysia	en_US
dc.title	A Pilot Study On Pedsql ™ Modul Impak Keluarga Among Caregivers Of Children With Transfusion Dependant Thalassaemia In Hospital USM, Malaysia.	en_US
dc.type	Thesis	en_US

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